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Today was the first day I was able to leave my house in almost a week. My pxe flareups have kept me inside. I hope I can get out more often, sitting inside is getting old. I want to be able to enjoy where I live. ❤️ www.pxe.org/art #home #tahoe #southlaketahoe #California #winter #snow #mountains #getoutside #chronicillness #pxe #pseudoxanthomaelasticum #spoonie #pixielife #lifeofapixie

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